From 20.10.93 until June 2008 there of have been taken control 210 patients
suffering from siringomielia, malformation of Chiari I and scoliosis, by means of the
section of the filum terminale. |
Kevin Espinosa, syndrome of Arnold Chiari I, Syringomyelia.
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My name is Kevin Espinoza Semenario, I am 14 years old, I
am from Peru (LIMA), and I have Arnold Chiari 1 syndrome , Syringomyelia and Traction to medular syndrome. |
By the end of the month in March 2007, I was at school and began to feel bad, i had intense pain coming from my head, I lost the notion of the space, my breathing was anxious, the pressure was low, and I couldn´t speak clearly, It was difficult to remeber words let alone pronounce them.
My parents made the inquires of these results with different neurosurgeons in the country and all informed him that the only exit for the disease was to do a craniectomic suboccpital.
They never accepted this type of intervention, we were destroyed but we never lost faith, and they (my parents) felt sure to find another type of intervention that existed and that wasn´t obsolete and that offered guarantee. My parents spent various nights searching on internet this disease and through this route he located Doctor Royo Salvador and began to find out on the type of surgery that he practised on diverse patients, and the exit it had.(Filum Terminal)
Including my parents also communicated with other patients that had suffered the same disease and that were intervened by Doctor Royo Salvador. Infront of all this darkness we saw the light.
Hence, from then on, we began to maintain in contact with the Institue Neurologic of Barcelona through the Gúzman Mulatilo family and they began to make arrangements to travel to Spain - Barcelona and Doctor Royo Salvador was who operated on me.
On the 28th of May I was in Barcelona, they did all the pre-operatory examinations and on the 29th of May Doctor Royo Salvador was operating on me, by means of his technique of the section Filum Terminal.
The operation lasted 30 mins, 5 hours later, I began to recover to sensiblity to the temperature in the superior part of the thorax, walked the day after and the discharged me from the hospital.
Now I am not fatigue, i walk without any problem, i don´t have headaches, I´m not nervious, my body responds to hot and cold stimuli and my apetite has increased, the colour of my skin has changed, I don´t have backaches. What I can´t understand is that why is this technique not practised in other places around the world, because neurosurgeons insiste on cruel surgery and obsolete (craniectomic suboccpital) that doesn´t guarantee your life.
I have knowledge that this technique from Doctor Royo has been exposed in different places and by different means (congress, books, forums, WEB PAGE etc).
There are millions of people in this world, that suffer this illness and that can be liberated from the situation, because this bad existance cures.
If the technique Filum Terminal extends around the globe, a lot of lives woule be saved.
El Doctor Royo has given our family back the tranquility and as well as stability, and we always had confidence in him as from day one, and for me he has given me the possibilty to continue on with life.
My gratitude to my family, to Doctor Royo, the Gúzman family, Gúzman Espinoza, and to every person that prayed for me, and God because he guided my steps. I hope that this testimony will help the people with this illness. If you would like to communicate with me my email is: Kevin_05g@hotmail.com
Maria José F. Gil, syndrome of Arnold Chiari I, Syringomyelia and Scoliosis.
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Hello, I am 21 years old and a patient
of Dr Royo, that suffers Arnold Chiari I syndrome, Syringomyelia and Scoliosis and with luck i found
out that i had all of these before noting the symptoms. From when i was a little girl, i was always complaining of headaches and later arrived a moment where my parents made case and took me to a pediatric just in case, and the pediatric recommended me to drink more milk. As well as i also complained of a backache, and for that reason they took me to a traumatologist and he found that i had escoliosis. When I was older, around about 18 years , i was studying to make the selective and i noticed like i was like floating, it didn´t reach my head, but i noticed myself rarefied and it did not allow me to centre myself. I went to the Doctor, and i had a contracted muscle caused by stress, it seemed logical, however in less than 2 months i returned having other muscular contractions, it was August, and all my concerns had ended and i was more relaxed, they requested that i have a Magnetic Resonance done and i went and it is when they discovered i had Arnold Chiari I syndrome and Syringomyelia. |
My parents like I,were terrified, and they didn´t stop to look for information at all costs possible. Thanks to his insistence, my father found on the internet a web page, Institute Neurologic Barcelona, he asked medical friends to assure him that it wasn´t anything strange and with alot of caution and with little precision they told me, at first i didn´t understand it very well, but the fact that they did not have to touch my skull and that the process was so very invasive made me think that it wasn´t a bad idea to go and visit him, (doctor Royo). When i went to visit, i was stubborn in front of the Doctor, it seemed very strange to me that there was so little information on the web about this operation, and that he was the only one that did this intervention and above all that it was so different to what other doctor had told me. I went with hope and left with more hope than when i entered.
In little more than a month I had the operation and as soon as i could open my eyes i saw my parents entering the room and they already had begun to notice changes in me, I began to notice things little by little and as time went on i realized others, not even realizing that they were caused by the disease.
I think that its cruelty how the other doctors operate(intervene), and injust for the patients to recieve such little information about possible techniques that are so good and very effective like this one (of doctor Royo) and for that reason i have written this testimony and to offer advice to all those that want to recieve it.
EMail: mafuegil@hotmail.com
Carlo Condello, Malformation of Chiari I, Syringomyelia, Scoliosis.
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My name is Carlo, I am Italian, I
am 4 years old and I have been born with a rare illness,"Arnold Chiari I Malformation. From a
young age I have had malaise, migraine, motor discordinación and retardation in the language. I began to do rehabilitation from 19 months, but the malaise increased. I began to have pain in the legs and walked with my toes. At the age of 3 me isité in the civil hospital of Genova "Gaslini", where they did a resonance and they diagnosed "Arnold Chiari I Malformation". From the 3 of February of the 2006, my life changed it worsened: it prohibited me to run, to jump etc?. |
Friends and relatives looked in Internet and find Dr. Royo.
We decided to immediately to leave for Spain, calling it “ Journey of Hope ”.
When we arrived Dr. Royo found me with hipotonía in the legs with the risk of undergoing paralysis. When arriving in Barcelona on the 12 of February, after the many examinations, the diagnosis made in the Gaslini Hospital of Genova was confirmed. On the 13 of February Dr Royo operated on me. Dr Royo, as soon as I left the operating room already had very good color.
There was a new impulse in the legs, and after a entered day I returned to house. Of the 15 of January to the 12 of February I underwent so much?.
Now finally I can say that my life has changed, support all the foot when walking and return to be a normal boy. Before the operation i took medication for the hyperactivity, later, no longer did i need it. All this thanks to Dr. Royo who has studied thoroughly this disease and with the aid of the Gentleman has blocked it and it has given life expectancy me when it already thought that it was not going to grow. Thank you very much with all my heart to all the people who have been close by me, in individual to my uncle Pine, Safe uncle and Orazio uncle.
In the Faith
Carlo Condello
Mercedes Reverter Segarra, malformation of Chiari I, Cervical Hernia Discal C4-5 and C5-6.
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I am Mercedes Reverter Segarra of 61 years, 35
years ago I suffered backaches, firstly it was only lumbar pain and even remaining myself in the bed. Later
the thing was as well complicating itself also with cervical pain. I went to the doctors, whom which gave me
medication for the pain and they said that I had to have patience and to acustom myself to the pain because
it was artrosis and that there wasn´t a solution. I time was passing , every time i felt worse, with more
pains, and they were a lot stronger everytime and I needed more time to recover. 5 years ago I could no longer
hold the pain so I began to go to all doctors, who were saying to me either by insurance or by paying and
nobody gave me a solution. By this stage i was desperate because the pain did not cease, it took away my desire
to live, i didn't have hope i only wanted to die , because of the way that I was living wasn´t the way to live. Always with that pain, no matter what i took it didn´t have any effect on me. Until autumn of 2006, things started getting complicated, no longer could i move my neck, i was always nauseous and dizzy having to remain in bed for weeks ,i couldn´t hardly walk only to my rate and i did not have force in the right hand, I lost all sensitivity and to make matters worse I was depressed. I did not know that to do, i felt that my life didn´t have any solution and that i wouldn´t be able to move myself and end up in a wheelchair. |
My brother had been operated on with cervical hernia in Barcelona by Dr. Royo and he said to me that why don´t i see what the Doctor has to say and without thinking twice i went. Dr. Royo kindly told me that we needed to undergo some tests and that later we will speak, much to my and my families surprise was when he told me that i had 4 problems. I had two cervical hernia discals very advanced and that it was pressing on the spinal cord. Also filum terminal disease from birth, a lumbar pinch and finally, a loss of mobility in the right arm. I was so shocked as well as my family but at the same time we were glad because we finally we knew what i had and that it had a solution, to operate.
On day 13.2.07 Dr. Royo operated on me at the Corachan Clinic in Barcelona, the operation consisted of a discectomy and cervical artrodesis C4-C5 and C5-C6 with titanium boxes and section of the filum terminale. The operation was long and delicate, when I woke up Dr. Royo told me that everything had gone very well.
I was calm because i knew that i was in good hands. The following day I noticed that something had changed in my life ,that I HAD NO PAIN. Every day that went by i found myself better and continued having NO PAIN. Day 16.2.07 i was discharged from the hospital having already recovered 70% of force in my hand and could walk perfectly without pain in my leg.
When arriving home i rested the maximum however i had so much joy because i felt so good without any pain and nor dizziness.
I will never be able to thank him enough nor my family, for what Dr. Royo has done to me. Because it has given me back the desire to live. Now, I begin to be happy..
THANKS.
Telephone: 649222127
E-mail: administracion@viverosangol.com
HERMINIA CARRIZOSA GUERRA, malformation of Arnold-Chiari I, syringomyelia and Scoliosis
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Hello, I am called Herminia, i live in Malaga
and am 57 years old. What I want from my testimony is to be able to help patients understand that there is
hope, and like I, we thought that our future was destined to a wheelchair. I have been suffering symptoms of Arnold Chiari I syndrome and Syringomeylia from the year 1987, and it wasn’t until year 1997 when they discovered it, because of my ailment. During those ten years I went from traumatologist to traumatologist and neurologist to neurologist, until peculiarly, a physiotherapist was the one who guessed it right, the disease. As of that moment, in only months I was intervened on the craniotomy, a highly dangerous operation in which I took more than 6 months to recuperate myself. In spite the risk of this intervention I healed wonderfully, although the suffering didn’t serve as much, even though that neither the pain nor the symptoms diminished absolutely. |
On the contrary, little by little they were increasing. Thus,
for example, they diagnosed me having apnoea dreams and an oesophagus ulcer that obliged me for more than
one year to feed me only liquids and papilla’s, and even going through days without eating as I couldn’t
support the pain swallowing. But it got worse adding to everything my aliments, the scoliosis. At the moment
I felt totally indignant and defrauded, also abandoned, it seemed like if nobody had interest to help me.
They say that when something bad happens something good is on its way. In November of 2006 I had a loss
of knowledge and I am still waiting for them to give me an answer. I collapsed to the ground and I hurt
my two ankles. As of that moment my spirit against fighting the illness I collapsed and all I thought I
had left, was to resign.
Miraculously, my daughters desperation took them to investigate on their own accord through Internet, and
it was like that how they found me the doctor, Dr Don Miguel B. Royo. We sent an email, waiting, an his
reply was immediate. In only fifteen days I was taken care of in Barcelona, and I put all my hopes into
the hands of the medicine of this genius. That same day, the 13th of December of 2006, they did explorations
(tests, examinations), day 14th they operated on me and the 15th of December, after almost a year without
being able to eat, I ate 2 patty cakes for breakfast before going to the hospital. It could be a silly
anecdote, but for me, it was the first day of my new life. Since then the symptoms, of many, have improved.
We aren’t deceived, we can’t travel into the past, and the damage done doesn’t have to return, but my future
now is another thanks to the Filum Terminale operation.
Since then, the pain has diminished considerably, having in mind that I didn’t take, nor if I wanted to,
one of my old tablets. In addition, I have recovered part of the tact in the right hand and the tingles
have ceased. No longer do I have dizziness, nor do my legs hurt, and in general, I feel better, happier
and more active than when I was 20 years old, or at least it’s how I feel. By all means I forgot to
say, from that day i eat perfectly.
Thank you for fighting against this illness with your talent, The Doctor demonstrates a warm and
gentle character towards the patient.
mibsc@hotmail.com
Maria Luisa Pedrosa Jiménez, malformation of Chiari I
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Those that have past through this experience
we want to say so many things that refer about the same thing, but we don´t know where to begin.. I am 48
years old and have been having headaches for almost 4 years, I don´t remember, a year and a half ago I went
to the Social Security Neurologist and they did a Magnetic Resonance on me, of which they didn’t tell me the
truth, they informed me of Musculoesquelética Malformation, which does not have anything to do with Chiari, I
took medicines that didn´t work on me. I returned to the private practise to more than 3 neurologists, either coincided, and I was getting worse and another time I went to Social Security to request for a Resonance and to know how it went. Then I had to go to archives for a previous inform (report), and it was when I noticed that I had cerboloasas decreased owing to a Malformation of Arnold Chiari I, and I asked myself. “Why didn´t the neurologist not call it by his name?”. |
Well, the story is that I arrived at home and I turned on the Internet, much to my surprise is when I
saw what I was suffering, I was astonished, and clearly I started investigating until I found Doctor Royo
Salvador, clearly, if he opens a door in your life, the hope of getting myself well without an aggressive
and complicated intervention like how they open your head. The first thing that I did was got in contact
with a female patient already operated and I felt good with everything that she explained to me, and then
I called The Doctors Clinic and I prepared everything to go and be intervened.
We are enchanted with the treatment, the predisposition, the humanity, the peace that breathes when speaking
with him, the tranquillity that he gives, that everything he says is little, in the morning I had tests, in
the afternoon results, and the following morning he operated me, I entered operating theatre at 9am and at
10.30am I was –in the ward with a lot of appetite, without headaches, without stitches, with annoyances,
and the day after they discharged, I went for a stroll around Barcelona like as if I hadn´t been recently
operated on, I was fabulous, and continue to be, I haven’t had to take sedatives, because nothing has hurt.
From when they operated the 13th of November 2006 until now I don’t know what pain is, they took off my
back contractures, my vision is more centred, no longer do I choke, above all the itch I had in my throat
didn’t return which was the most annoying because with a cough my head exploded, I am more upright, my face
expresses health and well-being, everything is really good and I’m really happy. But also very indignant
because if you don’t have Internet, how can you find out about these options, if nobody tells you, because
S.S (social security) believes that it’s their right to make the people suffer knowing that there are
other alternatives. I will spread the word, my next letter will be to the newspapers in my city which is
GIJON, ASTURIAS, it is called THE COMMERCE and I will spread it in all places wherever that’s possible
for me, and if they allow me, I have informed many competent physiotherapists that I know of which it
interested them. Well, after treating me without results, due to that everything was for Chiari I and
now I consider that many of my symptoms at the time just treated the problem, for example some request
if you already have a Resonance report, and they have the information of the Filum Terminal and the
Doctor Royo Salvador. My name is Marisa, my telephone is enclosed below for all whom would like to
speak with me at whatever time.
Regards.
Many thanks to Dr Royo Salvador and his magnificent team.
marysapj@hotmail.com
659571139
RAFAEL A. ARÉVALO, Chiari I Malformation,
Syringomyelia and Scoliosis
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Next I detail the symptoms
that I was noticing after the operation of Filum Terminal, things that before made my daily
life difficult. 1. Cervical pain, now it has disappeared. 2. I am having more force in my legs. 3. I had constant pain in the lumbar region, now nothing. 4. I could not rotate my left hand outwards and now I do not have a problem to do it. 5. Before I could not mobilize my left toes well,and now they are normal. 6. Before in a certain position my left heel shook alot and now it doesn´t. 7. When walking I feel more strength in my legs. 8. The mobilization of the head is now free, before I found a limit when turning it. 9. I find myself more up right, without tension in the torso (from the waist up). Before I was like shrinking. 10 The incontinence went slowly improving, with the hope to recover the maxium possible. |
Now in relation to my state of mood, it is much better, I leave and I enter constantly,I enjoy
myself and work like a volunteer in an association that I preside and have done for some time.
I´m not sure where i can reach in recuperating myself, but I have the security that I won´t allow
it to win me over by any means. In addition, the sport that I´m practicing or exercises, I have
done it as a part of daily life, and they are fun, they help me to feel better, and if everytime
I can do more things that reinforces the hope and the conviction in one´s own capacities.
I hope to be of usefulness in whatever you need.
I send you a hug.
rafa20052@wanadoo.es .
JOAN SANCHEZ GARCIA, Scoliosis.
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My name is Joan Sanchez, and I am 25 years old from Barcelona. I want to put into writing my testimony by the illusion to know that with my toleration I have been freed by motivation and also illusion, I want to help to fight, so that this discovery arrives to all the homes where there is any equal person with or similar pain. My pain is scoliosis idiopathic caused by the tension of the Filum Terminale. This caused rotation of the vertebrae of the thorax box 3 curves of 10º, 25º and 39º respectively, and on the other hand it caused the displacement of my brain 1.5 cm downwards (Arnold Chiari I syndeome) The intervention has freed me from pain, that has been growing with me and worsening with time for the last 10 years. |
It is for me a pleasure, to express and to show my experience
here, my improvement, longed for cures, after years sailing without a course, knocking on doors of which the
solutions were mere patches to alleviate, to diminish or to calm the pain.
I have gotten rid of continuous lumbar annoyances and cervical,periodic contractions, permanent sensation
of binding, permanent alteration of the tact with a tickling sensation as opposed to any type of contact,
friction etc. and aslo logically a future in terms of not a very encouraging quality of life.
I have recovered, of a verified way, between 30% - 40% of force in my legs.
I walk differently, with ease, more relaxed, in such away that is more elegant and even more upright
without any doubt. My breathing is much better.
These progressions have been relatively recent, yet in the future everything will settle down and
the improvemnents will keep continuing.
I hope that something so good, so useful, practical, fast and benefical can be presented at a world-wide
level without vetoes, censorships nor impediments, that can arise from stingy and lucrative own interests
front to which it would have to reign like priority in all.....the alturism, the solidarity and the use of
common sense and above all and more in a transcendental subject as it is the human health.
Thanks Dr. Miguel........thanks!!
joansg@igrafic.com
FLORENTINA BLANCO , Scoliosis.
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Hello I am Florentina Blanco
Rodriguez, I am 51 years old, my son is Juan Blanco Cabaco (another case of scoliosis operated
on filum terminale by Dr. Royo), I live on the outskirts of Barcelona (Cornellà). From adolescence
I suffered scoliosis, my parents took me to many doctors, in those years the surgery was not so outpost
as nowadays and they only prescribed medicines against the pain, the inflammation and alot of gymnastics
so that the muscles were not atrophied. The pain followed, if I left out a single day taking medicines. |
With the years my disease was advancing, every time
they prescribed me more and more medicines but the pain followed. I had my first son, with the
pregnancy my disease got worse, at 2 months from when i had my son, I had to wear a corset from
the cervical to the zone of the sacrum during a period of the 5 years, having worn the iron corset
caused many more damages to me than improvements, at evening times when i took of the corset my
body faded away leaving me strengthless. They only thing diagnosed was scoliosis and they prescribed
me very strong medicine, that when i took them at night, i couldn´t hear my child weeping, which in
that time it was my husband who was in charge of everything.
Tired to live this, I attended a particular doctor to know if i still had some hope, because I got
to the stage of great depression, day after day my body did not respond to my daily tasks. That
doctor recommended me to take off the corset as it was atrophying me, and all the muscles,they
prescribed me medicines to reinforce my bones and rehabilitation to develop my muscular mass. I
had a very bad year, but I obtained that my muscles developed although i still followed on with pains.
I had my second son, the same happened just as my first pregnancy, everything got worse, years went
by and I was 46 years old, my depression increased seeing myself without strength in my legs and
fading away, losing the balance by not being able to control the function of my legs. I went to
social security doctors, but nobody found the solution to my problem,that could intervene me doing
an operation from the cervical zone to the lumbar zone, putting iron plates with screws, but with
that i would lose part of my mobility. There was a waiting list of three to four years, and that
if it something terrible happens (it could affect the heart or the lungs) or I would be left in
wheelchair, yet to speed up the intervention.
I went to the Plato Clinic to request a second
opinion from the other doctors to see if there was another solution to my problem,they did all
types of tests on me but they said to me that they were not prepared to do the intervention that
I needed and they gave me the contact of Dr Royo.
Dr. Royo did the first exploration to find a solution to my serious problem and he did
necessary tests and appropiate to see what intervention I needed. After three days of
having done tests, knowing the results and to see the problem that I had (Filum Terminal)
they operated on me. After 24 hours the operation I got myself up and walked without
hardly any pain, knowing that there were annoyances caused by the intervention, which
when my suffering had finished, i found an improvement of “ 10 ”, and good bye to the
tablets of pain, to the hours of weeping and not knowing what to do when it hurt me so much.
Today at my 51 years, I can do my domestic tasks, to go for a stroll, it is to say
that , in general I am like a normal and current person, and I do not have to depend on anybody.
PS: I desire that God gives many years to Dr. Miguel Royo Salvador so that he continues with his studies and that he can continue helping people who have the same problems that I had. As his last name says, he has been my Salvador - saviour and a great friend ..............................